blind american podcast by alex sparks

I had a great opportunity to talk to Alex Sparks on his podcast “Blind American” where he interviews people who live with retinitis pigmentosa and give them a platform to share their experience and inspirational stories. I met Alex on a Retinitis Pigmentosa Facebook support group and immediately we found alignment on our mission to help more people inflicted with this disease. I shared my personal experience with RP and how my encounters with the medical system brought me to become a scientist, patient advocate, and entrepreneur for the community. Please check it out at the apple podcast

The Blind American EP. 3. Van Duesterber‪g.

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patient perspective for Rare disease day panel